We visited the radiation Oncologist and the brain tumors have shrunk in size and volume and should continue to do so - they will check in 3 months or so again. He also said I had the most profound case of Cushing syndrome he had seen - it is called moon face syndrome - which explains why I look like a bowling ball or smiley face - while I was mulling that over, Gene asked if it would go away and the answer was yes - it is another side effect of the steroids. So I guess I will once again have cheekbones and a chin. I am glad to know that. He always asks the good questions.
My sisters came to visit this weekend and it was great. I had such a wonderful time with them.
I am getting stronger daily and am very determined to get full function back - I had a 4 inch gap in strength between sitting in an ordinary chair and standing but that is getting better daily and I still can't do more than a 2 or 3 inch step up but I am working on it. 2 weeks ago I couldn't sit up for more than 2 hours and now I can do 6 or 7 hours at a stretch so I am making great strides in strength. So the latest steroid taper is going well.
Who knew I'd be in the small percentage that reacts so weirdly to steroids- part of that over-achiever thing I guess?
Life continues to be good.
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